It is reassuring to know that the quantity of research surrounding Parkinson’s Disease is increasing every day. More aspects of the disease are being studied and more non-motor symptoms being considered. Besides the scientific aspect of PD, more people are blogging about the disease every day.
In case you don’t have time to read them all, here are some snippets of what is out there today. Click the link on the ones you want to investigate further.
FATIGUE is a real problem for patients with PD. On a personal note, we used to be able to take day trips to see friends, family, or just sight-see. Then we had to cut back to just being out for 2-3 hours. Now we can visit one place, and hubby is ready to go home and rest the remainder of the day. Check out Dr. C’s experience with fatigue in his blog.
LIGHT THERAPY caught my attention because it does not involve drugs, and it is non-invasive. A recent study showed that “PhotoPharmics’s Spectramax light therapy reduces disease severity, lessens non-motor symptoms, and improves the quality of life of Parkinson’s patients”. This sounds like something every PD patient will welcome one day. Being in the sunlight for short periods of time seems to help my husband, so perhaps this is something we could try. You can read more about it here.
EXERCISE is encouraged in all stages of PD, a topic championed often. Usually, it is recommended with an aim to keep the patient active and moving. In addition, studies indicate that exercise also helps the mood of the PD patient and can help “alleviate depression.” This makes sense on a practical level, especially when exercise is performed with a group or in a social setting. In addition, this article mentions the medical and physiological reasons. Let’s all keep exercising!
THE MICRO PUMP is a relatively new device being tested for administering levodopa/carbidopa to PD patients. Our neurologist mentioned this to us several months ago, and he explained that it is similar to a pump used by diabetics for infusion of insulin. This article explains that it has recently been cleared for use in Europe. Watch for its introduction into American markets in the near future.
VIDEOS are the newest addition to the Michael J. Fox Foundation website. There is a 4-part series to educate us on the PD itself, and then there is one specifically for us as caregivers of patients with PD. Be sure to check out other parts of the MJFF website.
And now for your inspiration:
TIM HAGUE has an award-winning TEDxWinnipeg talk that is well worth watching, for both you and your spouse. As a PD patient, he gives a positive perspective on living with PD, and he talks about his experience with his son on The Amazing Race Canada. He has written a book entitled “Perseverance: The Seven Skills You Need to Survive, Thrive, and Accomplish More Than You Ever Imagined,” about his life and his journey with Parkinson’s Disease. I have not read the book, but I have watched his video and plan to view it again with hubby.
There is hope for a cure for PD, and there are new studies and new inventions every day. Don’t give up hope!
Thanks for reading and commenting. I truly appreciate it.