Keep Making Memories

Sometimes I get lost in my own thoughts while analyzing life. Sometimes I get bogged down under the weight of making all the decisions in our household. And sometimes the way ahead does not seem clear. At those times I also go back to what I know to be true. Regarding this blog, I keep this goal ever before me:

The purpose of this blog is to encourage and support those who care for a loved one with Parkinson’s Disease or any other degenerative or chronic disease.

Today you might wonder what my struggle is. What is the conundrum I am facing? Simply put, it is how to celebrate Christmas this year. Hubby’s condition has deteriorated, and he shows little engagement in everyday activities. Very few things bring him joy, and when they do, it is seldom that he shows it. So, do I make the effort to celebrate?

We will likely be alone at Christmas, or at least in another room from our family, which I understand is for our safety. And even though it really stinks, I know it is happening with many all around the globe. Many of you will be isolating as well. So, in deciding whether to decorate and to do anything special at home, the easiest thing would be to say “NO”, after which I would likely fall into sadness and then depression. But that would be the easiest thing to do. To give up. To give in to the realization that it might not make any difference if we just coast along during this Christmas season. (I expect I am not alone in these feelings.)

But if I have much for which to be thankful, as I wrote last Saturday, I cannot just give in. Celebrating Christmas means being thankful that God sent Jesus into the world. Celebrating Christmas also brings hope, and we all need that right now. Celebrating Christmas is an expression of my faith, which is very dear to me and to hubby. Celebrating Christmas also provides a way for us to give to others, to show charity, to be generous, which changes our focus from inward to outward, something we all need right now.

So, we are celebrating Christmas at our house. We are sharing traditions of the past without worrying about hubby’s limited response. We are also making memories for the future. Who knows what the future holds for any of us? That is not something we need to worry about. Instead, let’s make the most of every moment we have, even if we, the caregivers, are the only ones who show enjoyment in it.

None of us live on an island to ourselves. We all have family and friends who are watching us and who are taking encouragement and inspiration from how we treat our loved one and how we live life. We are setting an example for the time when THEY may be tasked with caring for a loved one. Let’s set a good example. They may one day take care of us!

So be encouraged, my friend, to make a new memory this year while sharing in a few familiar holiday traditions. I would love to hear about them.

Thanks for reading and commenting. You inspire me!

Published by parkinsonscare

I'm a retired mathematics teacher, mother, and grandmother. I cared for my husband for 23 years, and now he is in Heaven. My new mission in life is to support and encourage caregivers like you!

10 thoughts on “Keep Making Memories

  1. It would have been so easy to skip decorating this year. My heart isn’t in it after losing my Aunt and I’m still missing her and messing with her estate. The pandemic alone is dictating isolation. But Our Lord…., and there is always Jesus and as you say, we do it for and as an example to our loved ones. We have four children: Christmas celebration #1 was mailed done on FaceTime when it was received. We had fun! Christmas 2 is today and we will do a drive over and drop, talk from a distance (with masks of course), and leave. The best part is I get to put eyes on my single son and bring him a few Christmas goodies. Then for tomorrow’s celebration we start our new celebration. We will do the same with #3 as #2 but dressed as Mr and Mrs Santa Claus. Hubs was “not doing it” until he realized the coverage he was getting from the hair and beard and costume. This is for a single parent daughter with two teen daughters and I know they will love this! 😃 #4 is the last and the same as #3 but with great grandchildren all less that 3 years old! We will incorporate a face shield in case one of those babes want to crawl in Santa’s lap. So, is it perfect? No. Will I miss the chaos of having us all together? Yes, I will. But we found our joy with each child individually and we are celebrating together on Christmas Day with a nice meal for just the two of us. The verse that guides me is “Rejoice in the Lord always; again, I will say rejoice.” Phil 4:4

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  2. These thoughts occurred in our home this week, too. And here’s how it unfolded for us … I decided to go ahead and decorate, many of the items which hubby and I made together many years ago. We ended up reminiscing about each piece and that brought so many smiles. Was it worth it? Yes!

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  3. God bless you for pressing ahead, Cheryl, and knowing that doing so will bring you sweet memories when all is said and done. I remember last year after my husband had foot surgery in December and wasn’t able to walk. Our daughter and SIL couldn’t come here, but we enjoyed our other son and then Aaron, of course. 🙂 But it was different and it was hard to “manufacture” that some fun spirit. However, it was good that we kept routines as well as we could – even playing our traditional Christmas Bingo with Skype – and Aaron having a seizure right at the beginning. I have no regrets, and you know that you won’t, either. Prayers for all of you, dear friend!

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      1. Christmas Bingo is just a game we got at Walmart years ago. Instead of numbers it uses pictures of Christmas things like reindeer and trees, etc. I wrap small gifts, some of which are funny, and the winner of each round draws a number corresponding to a numbered gift. It’s all crazy and fun, and usually drives Aaron crazy and he has very little fun. 😅

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  4. Merry Christmas and celebrate every day the gift of Jesus in our lives. Every day my sweet hubby is home and not in a memory care institution is a gift to me. He is my gift. I am blessed. You bless me in writing how I am feeling. Thank you. God bless you and your family.

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