Ten Things I have Learned from Parkinson’s

It is no secret that there are good days as well as difficult days for us as caregivers. Some days life moves along with very few minor bumps in the road. But then there are those other days when we just want to give up. I have had both, and I’m sure you have also.

The goal of this blog is to encourage and support you as you care for someone with Parkinson’s Disease or some other degenerative or chronic disease.

This morning I found this image in my archive. Please take a moment to read each box. Think about your experience with each one.

Here are my thoughts:

#1 Some of our loved ones are prone to apathy. Let’s try to keep them involved in some hobby or activity that keeps them engaged. This can be a huge challenge for some, but it is worth the effort.

#2 A positive spirit every morning was helpful for us. Instead of watching the news in the morning, which can be very negative, I tried playing some favorite peppy music to get us going on a positive note. (pun intended here)

#3 How many times have we had to change our plans due to a bathroom accident just as we were headed out the door? We have also had to change course when hubby just didn’t want to go to something I had planned. Has that happened at your house? Most plans can be altered at the last minute if that is best for our loved one.

#4 The Serenity Prayer comes to mind with this one. Think about it! Pray it.

#5 True confession – I did not always respond in a loving and patient way with Carlton. Only a perfect person could do that, and neither of us is perfect. So, when our reaction is less than stellar, we can apologize and attempt to do better next time.

#6 With degenerative diseases, often the progression is cane to walker to wheelchair to bed. We just keep adapting. It is how we roll, so let’s roll with grace! (another pun?)

#7 Carlton is the best example of this. The last day words he spoke with meaning will stay with me for the rest of my life. He was famous for one-liner jokes. And his last word was “donut” in response to a joke. He smiled as he said it. Let’s help our loved one keep their great personality even to the end. These make great memories. As an aside, I realize that many lose the cognitive ability to reason and think clearly due to dementia. This is not preventable. We just adapt. Right?

#8 To those in the early stages of PD, this one is so true. Keep moving. The longer you move, the longer you will be ABLE to move. Don’t stop yet!

#9 Even when you can only move a little, , , , MOVE A LITTLE!

#10 It is important to keep our minds active as long as we can. Let’s do all we can to keep curiosity and creativity active.

If I had created this image, I would have changed #10 to read, “Don’t be afraid to ask for help when you need it.” Please reach out when you need help.

Thanks for reading and commenting. I am praying for God to give you.

Published by parkinsonscare

I'm a retired mathematics teacher, mother, and grandmother. I cared for my husband for 23 years, and now he is in Heaven. My new mission in life is to support and encourage caregivers like you!

6 thoughts on “Ten Things I have Learned from Parkinson’s

  1. Yes to your thought about number 10. I did not realize this until about December of last year. That’s when Cheryl’s cousin’s wife volunteered to help after I had help her with a problem. Since then I realized that many of us simply wait and hope some good Samaritan will magically appear. But if you ask most will help in some way. … and don’t be put out if the person you ask is unable to accommodate you immediately.

    Liked by 1 person

  2. The chart is amazingly right on. We all should have this poster in our closet to refer to it often. Your points are also looking into our daily lives. Thank you and God bless you too.

    Liked by 1 person

  3. I decided that even if my spouse who has Parkinson’s won’t adopt these suggestions, his caregiver can do it! All suggestions are great! Thank you!

    Liked by 1 person

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