This is Really Bad, But , , ,

When life is difficult, it is normal to wish it was not! As a caregiver, life is sometimes really difficult, and it does no good to sugar-coat it. Caregiving is not always pleasant. However, I learned a valuable lesson this week about difficult times, so I’m passing it on to you. Due to the effectsContinue reading “This is Really Bad, But , , ,”

When Communication Becomes Difficult

My goal is to support and encourage those who care for a loved one with Parkinson’s Disease or any other chronic or degenerative disease. Recently my daughter reminded me of one thing that Carlton was always worried about. He was afraid that he would get to the point where he could not communicate verbally. HeContinue reading “When Communication Becomes Difficult”

So Many Choices

When I began this blog 3.5 years ago, I read that I should set a goal for my writing which would keep me focused and give purpose to this space. My goal is still to encourage and support those who care for a loved one with Parkinson’s Disease or any other chronic or degenerative disease.Continue reading “So Many Choices”

Are We OK With Apathy?

Much has been written about apathy on the part of patients with a degenerative disease such as Parkinson’s. Sometimes it seems as if they just give up. But if we look at it through the eyes of the patient, we might see things differently. They know their disease is going to only get worse. ItContinue reading “Are We OK With Apathy?”

Ten Things I have Learned from Parkinson’s

It is no secret that there are good days as well as difficult days for us as caregivers. Some days life moves along with very few minor bumps in the road. But then there are those other days when we just want to give up. I have had both, and I’m sure you have also.Continue reading “Ten Things I have Learned from Parkinson’s”

Do We Need a DNR?

Disclaimer – I am not a medical professional, nor do I pretend to know the answers to all of life’s questions. I am, however, someone who has faced these decisions while caring for my husband who had Parkinson’s Disease for 20+ years. The topic today is especially medical, so I want to be clear thatContinue reading “Do We Need a DNR?”

The Fine Line

As caregivers, we know that we walk a fine line most of the time. We are constantly making decisions between 2 things, some of which are consequential, and others that are trivial. And at times it is exhausting! We must decide:           How much to assist our loved one. Should we let them dress themselves,Continue reading “The Fine Line”

Let It Go!

From childhood we have learned that some things are absolutely important to do every day. Right? Like brushing your teeth every night before bed. Like making your bed when you get up. Like going to the dentist every 6 months for a cleaning. Like eating healthy food. And none of us would want to trivializeContinue reading “Let It Go!”

DON’T Say THIS to a Caregiver!

It is no secret that sometimes our friends, even our closest friends, just don’t know what to say to make us feel better.  The truth is that there aren’t many things one can say to make caregiving easier. There are no platitudes, no cliches, no magic words, no secret coded phrases that will make itContinue reading “DON’T Say THIS to a Caregiver!”