Are We OK With Apathy?

Much has been written about apathy on the part of patients with a degenerative disease such as Parkinson’s. Sometimes it seems as if they just give up. But if we look at it through the eyes of the patient, we might see things differently. They know their disease is going to only get worse. ItContinue reading “Are We OK With Apathy?”

Do We Need a DNR?

Disclaimer – I am not a medical professional, nor do I pretend to know the answers to all of life’s questions. I am, however, someone who has faced these decisions while caring for my husband who had Parkinson’s Disease for 20+ years. The topic today is especially medical, so I want to be clear thatContinue reading “Do We Need a DNR?”

What? Another New Symptom?

What do we do when a new symptom or difficulty appears? There were so many that I stopped counting: dry eyes, drooling, double vision, lack of facial expression, softer speech, smaller handwriting, and the list goes on and on. Today I’d like to choose one and tell you how we handled it from the dayContinue reading “What? Another New Symptom?”

One-Liners

My husband, Carlton, was the king of one-liners. He would listen to a conversation between 2 people, and it would seem as if he wasn’t really listening. But then, suddenly, he would interject a pithy statement, a one-liner, that really caused everyone to pause and take notice. He was a deep thinker, and his singularContinue reading “One-Liners”

Who do I want to be when I grow up?

When I think back to my childhood and the elderly people who were in my life, I would give them mixed reviews. Some were mean like one neighbor who used to yell at us to get off his lawn.  Some were curmudgeons who never said much, just had a scowl on their face and seemedContinue reading “Who do I want to be when I grow up?”

The Story of Two Advocates

My goal for this blog has always been to encourage and support those who care for a loved one with a chronic or degenerative disease such as Parkinson’s Disease. And today I would like to do just that by encouraging you to be an advocate for your loved one, especially when they cannot or willContinue reading “The Story of Two Advocates”

TRAUMA – Part Two

Thank you to those of you who commented on last week’s post. You gave me some great ideas and reminded me of other things I wanted to mention about trauma. First – your trauma is not exactly the same as my trauma, just as your situation is not exactly the same as mine. We mayContinue reading “TRAUMA – Part Two”

Adapting All the Way

Nothing stays the same. Change is inevitable. Life is dynamic – always changing. We’ve heard those sayings all our lives, and they are true. We don’t always enjoy the changes, but they happen all the time, whether subtle or monumental. We can point to 2020 to see countless changes in our personal lives, in society,Continue reading “Adapting All the Way”

“Must-Haves” for Caregivers

If we were all gathered in one room and could share our stories, we would find a range of caregiving experience, from newbie to seasoned veteran. If we listen to those veterans who have walked this road already, perhaps they could prepare us for what is to come. Here are a few things that mightContinue reading ““Must-Haves” for Caregivers”

Is it Real?

Hubby insisted that a tiny black smudge on the grout of the bathtub was really a bug! He even asked for a magnifying glass to count the legs on it. Seriously! And no amount of trying to talk him through it would satisfy him. This is year 21 of Parkinson’s Disease, and I hear aboutContinue reading “Is it Real?”