When Communication Becomes Difficult

My goal is to support and encourage those who care for a loved one with Parkinson’s Disease or any other chronic or degenerative disease. Recently my daughter reminded me of one thing that Carlton was always worried about. He was afraid that he would get to the point where he could not communicate verbally. HeContinue reading “When Communication Becomes Difficult”

I wish I could tell you . . .

The purpose of this blog is to encourage and support those of you who care for someone with a chronic or degenerative disease. But the truth is that I receive encouragement and support from you, my friends, more than I feel I give. It is really true that in giving, I receive. I wish thereContinue reading “I wish I could tell you . . .”

In Between

This is the most difficult place to be, in between 2 things. Today I am thinking of this time between being diagnosed with a disease or condition, and the end of life. (I promise to not get morbid!)   But the truth is that we are here. Our loved one has been diagnosed. Mine hasContinue reading “In Between”

When the World Changes Suddenly

My screensaver last week said, “Be thankful for today, because in one moment, your entire life could change.” I didn’t realize how true that was, until the coronavirus. Please don’t panic. It has not hit our house. But hasn’t the world changed in just this last week? I think of school closings, church closings, sportsContinue reading “When the World Changes Suddenly”

We are Advocates

When we care for someone, we have their best interest at heart. We want to see them function at their fullest, we want to see them comfortable, and we want them to be as content and happy as possible. It is what we do. We are caregivers. Those are our main objectives, just as theContinue reading “We are Advocates”

Words Matter

As adults, we understand that what we say is important, and our choice of words can make a difference. As the caregiver to my husband who has Parkinson’s Disease, sometimes I don’t know how to reply to comments people make about him, but I am learning! When meeting someone for the first time, or theContinue reading “Words Matter”

It’s Getting Quiet at our House

The purpose of this blog is to encourage and support those who care for someone with a chronic disease. For us, that disease is Parkinson’s. Sometimes I hesitate to “tell it like it really is” at our house because I don’t want to complain because it means I am being vulnerable, and because I don’tContinue reading “It’s Getting Quiet at our House”