So Many Choices

When I began this blog 3.5 years ago, I read that I should set a goal for my writing which would keep me focused and give purpose to this space. My goal is still to encourage and support those who care for a loved one with Parkinson’s Disease or any other chronic or degenerative disease.Continue reading “So Many Choices”

Are We OK With Apathy?

Much has been written about apathy on the part of patients with a degenerative disease such as Parkinson’s. Sometimes it seems as if they just give up. But if we look at it through the eyes of the patient, we might see things differently. They know their disease is going to only get worse. ItContinue reading “Are We OK With Apathy?”

Do We Need a DNR?

Disclaimer – I am not a medical professional, nor do I pretend to know the answers to all of life’s questions. I am, however, someone who has faced these decisions while caring for my husband who had Parkinson’s Disease for 20+ years. The topic today is especially medical, so I want to be clear thatContinue reading “Do We Need a DNR?”

The Fine Line

As caregivers, we know that we walk a fine line most of the time. We are constantly making decisions between 2 things, some of which are consequential, and others that are trivial. And at times it is exhausting! We must decide:           How much to assist our loved one. Should we let them dress themselves,Continue reading “The Fine Line”

Let It Go!

From childhood we have learned that some things are absolutely important to do every day. Right? Like brushing your teeth every night before bed. Like making your bed when you get up. Like going to the dentist every 6 months for a cleaning. Like eating healthy food. And none of us would want to trivializeContinue reading “Let It Go!”

What is Quality of Life?

Last week I advocated for quality of life versus quantity of years of life, but I never really defined that term – Quality of Life (QoL). And it could mean different things to different people, right? It is important to note that there is no “correct” definition, which also implies that there is no “incorrect”Continue reading “What is Quality of Life?”

Is there a Solution for Every Problem?

When I retired from teaching high school mathematics 5 years ago, I would have answered that question with a resounding YES! Today, I’m not so sure. From the perspective of the caregiver of a loved one with a degenerative disease, many problems that we encounter can only TOTALLY be solved with the curing of theContinue reading “Is there a Solution for Every Problem?”

The Impossible becomes Possible

As I read the Advent devotional each morning during this time of year, I am struck with the reminder that “With God all things are possible.” (Luke 1:37) That was God’s promise to Elizabeth and Zachariah when the angel told them they would have a son whom we call John the Baptist. That was God’sContinue reading “The Impossible becomes Possible”

How Things Have Changed

For the past 3½ years I have shared weekly my journey as a caregiver for my husband with Parkinson’s Disease. My mission has been to encourage and support all of you who care for a loved one. In many respects it has also been a journal for me to document the progress of this disease.Continue reading “How Things Have Changed”

No Regrets

My goal is to encourage and support those who care for someone with a chronic or degenerative disease. That sounds easy, but when you’re there in the trenches, cleaning up messes or explaining things for the third time, or changing a catheter bag, or trying to figure out how to insert an epi-pin, life canContinue reading “No Regrets”