Are We OK With Apathy?

Much has been written about apathy on the part of patients with a degenerative disease such as Parkinson’s. Sometimes it seems as if they just give up. But if we look at it through the eyes of the patient, we might see things differently. They know their disease is going to only get worse. ItContinue reading “Are We OK With Apathy?”

Quality of Life

In the 3.5 years of writing this blog, I have never specifically written on “quality of life” or QoL, until now. According to Google.com, quality of life means “the standard of health, comfort, and happiness experienced by an individual or group.” For Carlton and I, during his time with Parkinson’s Disease, our goal was toContinue reading “Quality of Life”

HOPE after Darkness

Today is Saturday before Easter. If we place ourselves back in time, we realize that Jesus is dead, and the disciples are devastated. What should they do now? Jesus was their hope, their Savior. Yet, He was dead. Some call this day, “Silent Saturday” because God in Heaven was silent. However, we know from historyContinue reading “HOPE after Darkness”

The Fifth Season

In Kindergarten we learn about the 4 seasons: Summer, Autumn, Winter, and Spring. And those 4 become the norm for life for us. As children, we come to anticipate Summer and the change from school days to fun days. We even learn to associate the weather patterns of the seasons, depending on where we live.Continue reading “The Fifth Season”

The Impossible becomes Possible

As I read the Advent devotional each morning during this time of year, I am struck with the reminder that “With God all things are possible.” (Luke 1:37) That was God’s promise to Elizabeth and Zachariah when the angel told them they would have a son whom we call John the Baptist. That was God’sContinue reading “The Impossible becomes Possible”

Peace through Sadness

Sometimes, but thankfully not always, it seems that everywhere we look there is sadness. This was one of those weeks. As a self-proclaimed problem solver, I wish I could fix things so that people won’t have to be sad anymore. I wish there was no more death. No more pain. No more depression. But thatContinue reading “Peace through Sadness”

Of Mantras and Music

To encourage and support those who care for a loved one with Parkinson’s Disease or any other chronic or degenerative disease – that is my goal. Of Mantras (a statement or slogan repeated frequently) People ask me how we have made it so long dealing with a disease like PD. My answer is 3 wordsContinue reading “Of Mantras and Music”

Beyond Understanding

I will never fully understand Parkinson’s Disease. Just when I think I do, hubby does something that doesn’t fit that mold I have built in my mind. Perhaps we can never predict a disease that affects the mind because we don’t fully understand how the brain works. How can my intelligent husband who is usuallyContinue reading “Beyond Understanding”

Caregiver Guilt

While caring for my husband who has Parkinson’s Disease, I am constantly faced with the realization that I am not perfect. There are many times I feel like I’m just not cut out for this job because I cannot get everything right. That leads to feelings of guilt. Caregiver guilt. We know we have CaregiverContinue reading “Caregiver Guilt”

Living on an Island

I have always wondered what it would be like to live on an island – the kind where the only access was a ferry. Maybe this would be a private island whose only structure was my house. Whatever I wanted in terms of supplies would have to be carried in on the ferry. And ifContinue reading “Living on an Island”