So Many Choices

When I began this blog 3.5 years ago, I read that I should set a goal for my writing which would keep me focused and give purpose to this space. My goal is still to encourage and support those who care for a loved one with Parkinson’s Disease or any other chronic or degenerative disease.Continue reading “So Many Choices”

The Fine Line

As caregivers, we know that we walk a fine line most of the time. We are constantly making decisions between 2 things, some of which are consequential, and others that are trivial. And at times it is exhausting! We must decide:           How much to assist our loved one. Should we let them dress themselves,Continue reading “The Fine Line”

What is Quality of Life?

Last week I advocated for quality of life versus quantity of years of life, but I never really defined that term – Quality of Life (QoL). And it could mean different things to different people, right? It is important to note that there is no “correct” definition, which also implies that there is no “incorrect”Continue reading “What is Quality of Life?”

MOBILITY SOLUTIONS #2

Fixing Falling This answer is simple – you can’t. I could just stop there, and you would be disappointed, but you would probably understand. Parkinson’s patients are going to fall. It is inevitable. But we can unpack this topic somewhat, and perhaps we can find some ways to prevent a few of the falls. AsContinue reading “MOBILITY SOLUTIONS #2”

MOBILITY SOLUTIONS #1

Fixing Freezing and Festination Last week we decided our biggest problem for people with Parkinson’s Disease was mobility, specifically freezing, falling, and festination. Today we need solutions! PROBLEM #1 – Festination           This is the tendency to walk on the balls of the feet which causes the steps to gradually become shorter. Eventually, our lovedContinue reading “MOBILITY SOLUTIONS #1”

Is Falling a Problem?

Or maybe stumbling or shuffling? At our house, all 3 were problems at one time or another. But falling is probably the most dangerous. It is truly a miracle that my husband never broke a bone in all those many falls. Looking back after Carlton was diagnosed, we remembered something that had been happening forContinue reading “Is Falling a Problem?”