Are We OK With Apathy?

Much has been written about apathy on the part of patients with a degenerative disease such as Parkinson’s. Sometimes it seems as if they just give up. But if we look at it through the eyes of the patient, we might see things differently. They know their disease is going to only get worse. ItContinue reading “Are We OK With Apathy?”

Ten Things I have Learned from Parkinson’s

It is no secret that there are good days as well as difficult days for us as caregivers. Some days life moves along with very few minor bumps in the road. But then there are those other days when we just want to give up. I have had both, and I’m sure you have also.Continue reading “Ten Things I have Learned from Parkinson’s”

Do We Need a DNR?

Disclaimer – I am not a medical professional, nor do I pretend to know the answers to all of life’s questions. I am, however, someone who has faced these decisions while caring for my husband who had Parkinson’s Disease for 20+ years. The topic today is especially medical, so I want to be clear thatContinue reading “Do We Need a DNR?”

The Fine Line

As caregivers, we know that we walk a fine line most of the time. We are constantly making decisions between 2 things, some of which are consequential, and others that are trivial. And at times it is exhausting! We must decide:           How much to assist our loved one. Should we let them dress themselves,Continue reading “The Fine Line”

DON’T Say THIS to a Caregiver!

It is no secret that sometimes our friends, even our closest friends, just don’t know what to say to make us feel better.  The truth is that there aren’t many things one can say to make caregiving easier. There are no platitudes, no cliches, no magic words, no secret coded phrases that will make itContinue reading “DON’T Say THIS to a Caregiver!”

What is Quality of Life?

Last week I advocated for quality of life versus quantity of years of life, but I never really defined that term – Quality of Life (QoL). And it could mean different things to different people, right? It is important to note that there is no “correct” definition, which also implies that there is no “incorrect”Continue reading “What is Quality of Life?”

Quality of Life

In the 3.5 years of writing this blog, I have never specifically written on “quality of life” or QoL, until now. According to Google.com, quality of life means “the standard of health, comfort, and happiness experienced by an individual or group.” For Carlton and I, during his time with Parkinson’s Disease, our goal was toContinue reading “Quality of Life”

The Dreams on the Back Burner

As a caregiver, your time right now is not your own. I remember that time. I would sit down to do something I really enjoyed, get into it barely, and then hubby would call my name. He needed to go to the bathroom. My time for ME was over. I would take a quiet momentContinue reading “The Dreams on the Back Burner”

It’s Official! I am an AUTHOR!

Some of you are thinking right now, “Why would a retired mathematics teacher want to write a book?” And your question is valid! Others of you are thinking, “She is finished with caregiving. Why doesn’t she just forget about Parkinson’s and move on?” And your question is valid! The answer to both questions is theContinue reading “It’s Official! I am an AUTHOR!”

How to Survive without Really Trying

This past week was an anniversary of sorts for me. It has been one year since my husband passed from this earth into Heaven. For one year I have had to mark “Widow” on all applications or surveys. That really stunned me the first time I had to do that. When we are in theContinue reading “How to Survive without Really Trying”