The Fine Line

As caregivers, we know that we walk a fine line most of the time. We are constantly making decisions between 2 things, some of which are consequential, and others that are trivial. And at times it is exhausting! We must decide:           How much to assist our loved one. Should we let them dress themselves,Continue reading “The Fine Line”

What is Quality of Life?

Last week I advocated for quality of life versus quantity of years of life, but I never really defined that term – Quality of Life (QoL). And it could mean different things to different people, right? It is important to note that there is no “correct” definition, which also implies that there is no “incorrect”Continue reading “What is Quality of Life?”

One-Liners

My husband, Carlton, was the king of one-liners. He would listen to a conversation between 2 people, and it would seem as if he wasn’t really listening. But then, suddenly, he would interject a pithy statement, a one-liner, that really caused everyone to pause and take notice. He was a deep thinker, and his singularContinue reading “One-Liners”

Oh No! Another Symptom?

Sometimes it seems that every day with Parkinson’s Disease brings a new symptom – falling, choking, skin problems, bathroom problems, cognitive decline. And the list goes on! Feeling overwhelmed by all of this? I did. Whether we have been on this Parkinson’s journey 25 days or 25 years, it can become all-consuming. When each newContinue reading “Oh No! Another Symptom?”

The Fifth Season

In Kindergarten we learn about the 4 seasons: Summer, Autumn, Winter, and Spring. And those 4 become the norm for life for us. As children, we come to anticipate Summer and the change from school days to fun days. We even learn to associate the weather patterns of the seasons, depending on where we live.Continue reading “The Fifth Season”

It Takes a Crowd

Good morning, Caregivers. Today I am thankful for you and your dedication in caring for your loved one with a chronic disease such as Parkinson’s. I am also thankful for what I believe is my job today and going forward. It hasn’t changed from when I began this blog, but I’m thinking of it inContinue reading “It Takes a Crowd”

No Regrets

My goal is to encourage and support those who care for someone with a chronic or degenerative disease. That sounds easy, but when you’re there in the trenches, cleaning up messes or explaining things for the third time, or changing a catheter bag, or trying to figure out how to insert an epi-pin, life canContinue reading “No Regrets”

Who Me? Ask for Help?

Many of us pride ourselves in being self-sufficient. We can do this. We are strong, independent caregivers, and we have been doing fine until today. But sometimes we do need help. Sometimes we just cannot do it all by ourselves. In some situations, we feel as if we are in over our heads, and weContinue reading “Who Me? Ask for Help?”