DON’T Say THIS to a Caregiver!

It is no secret that sometimes our friends, even our closest friends, just don’t know what to say to make us feel better.  The truth is that there aren’t many things one can say to make caregiving easier. There are no platitudes, no cliches, no magic words, no secret coded phrases that will make itContinue reading “DON’T Say THIS to a Caregiver!”

What is Quality of Life?

Last week I advocated for quality of life versus quantity of years of life, but I never really defined that term – Quality of Life (QoL). And it could mean different things to different people, right? It is important to note that there is no “correct” definition, which also implies that there is no “incorrect”Continue reading “What is Quality of Life?”

Quality of Life

In the 3.5 years of writing this blog, I have never specifically written on “quality of life” or QoL, until now. According to Google.com, quality of life means “the standard of health, comfort, and happiness experienced by an individual or group.” For Carlton and I, during his time with Parkinson’s Disease, our goal was toContinue reading “Quality of Life”

MOBILITY SOLUTIONS #2

Fixing Falling This answer is simple – you can’t. I could just stop there, and you would be disappointed, but you would probably understand. Parkinson’s patients are going to fall. It is inevitable. But we can unpack this topic somewhat, and perhaps we can find some ways to prevent a few of the falls. AsContinue reading “MOBILITY SOLUTIONS #2”

MOBILITY SOLUTIONS #1

Fixing Freezing and Festination Last week we decided our biggest problem for people with Parkinson’s Disease was mobility, specifically freezing, falling, and festination. Today we need solutions! PROBLEM #1 – Festination           This is the tendency to walk on the balls of the feet which causes the steps to gradually become shorter. Eventually, our lovedContinue reading “MOBILITY SOLUTIONS #1”

Is Falling a Problem?

Or maybe stumbling or shuffling? At our house, all 3 were problems at one time or another. But falling is probably the most dangerous. It is truly a miracle that my husband never broke a bone in all those many falls. Looking back after Carlton was diagnosed, we remembered something that had been happening forContinue reading “Is Falling a Problem?”