The Dreams on the Back Burner

As a caregiver, your time right now is not your own. I remember that time. I would sit down to do something I really enjoyed, get into it barely, and then hubby would call my name. He needed to go to the bathroom. My time for ME was over. I would take a quiet momentContinue reading “The Dreams on the Back Burner”

Frustration and Panic

My goal is to support and encourage those who care for a loved one with a chronic or degenerative disease like Parkinson’s Disease. And in doing that, today I want to relate two stories from my time as caregiver for my husband. Fear, distress, anxiety, feeling overwhelmed, frustrated, and then PANIC! These emotions are feltContinue reading “Frustration and Panic”

Peace in the Storm

Real life is full of storms. It’s a fact that we cannot escape no matter how much money we have, how much education we have, who our ancestors are, or how big our house might be. Storms will come. Disease brings storms, difficulties, messy situations, frustration, and even chaos. And the longer the disease lasts,Continue reading “Peace in the Storm”

Who do I want to be when I grow up?

When I think back to my childhood and the elderly people who were in my life, I would give them mixed reviews. Some were mean like one neighbor who used to yell at us to get off his lawn.  Some were curmudgeons who never said much, just had a scowl on their face and seemedContinue reading “Who do I want to be when I grow up?”

Not a Professional

I don’t get paid to be a caregiver. I have no special training to do this. So I really cannot claim to be a professional caregiver. Saying that makes me feel better, especially in situations when I really don’t know what to do. But I know my husband of 48 years better than anyone onContinue reading “Not a Professional”

The Rest of the Story

Couple number one arrived at the support group meeting, looking the same as always – a happy couple without a care in the world. But the truth is that he has Parkinson’s disease, and it took them an hour to get out of the door of their house because he didn’t take his pills, heContinue reading “The Rest of the Story”

“Must-Haves” for Caregivers

If we were all gathered in one room and could share our stories, we would find a range of caregiving experience, from newbie to seasoned veteran. If we listen to those veterans who have walked this road already, perhaps they could prepare us for what is to come. Here are a few things that mightContinue reading ““Must-Haves” for Caregivers”

My Word for 2021

As a retired teacher, I remember fondly the start of each new school year. It was always exciting to get new notebooks, new lesson plans, new ideas to implement, and decorate my classroom with new charts and pictures of what I hoped to accomplish that year. That’s how I feel about a new year. I’mContinue reading “My Word for 2021”

An Attitude Adjustment

If you know me personally, you know I have always had trouble with my attitude. Yes, sometimes my attitude needs an adjustment of some sort. Perhaps that is why I began this blog almost 2 ½ years ago. Talking about how I feel as caregiver to my husband who has had Parkinson’s Disease for aboutContinue reading “An Attitude Adjustment”

Caregiver Guilt

While caring for my husband who has Parkinson’s Disease, I am constantly faced with the realization that I am not perfect. There are many times I feel like I’m just not cut out for this job because I cannot get everything right. That leads to feelings of guilt. Caregiver guilt. We know we have CaregiverContinue reading “Caregiver Guilt”