Change is Gonna Come

My Haiku for Today Caring for your spouse Won’t always be like today. “Change is gonna come.” You can rest assured that things won’t always be as they are. As I have cared for my husband with Parkinson’s Disease for the last 20 years, I have noticed that things remain at status quo for aContinue reading “Change is Gonna Come”

Caregiver Burnout – and what to do about it

Tired of caregiving? Overwhelmed by too much to do? You might be burned out! Here are some signs for those of us who aren’t sure if we’re there yet. No matter how long you have been caring for someone with a debilitating or degenerative disease like Parkinson’s, you might be feeling burned out. This canContinue reading “Caregiver Burnout – and what to do about it”

The Red Tulip

You might have wondered why the design for this blog is a swath of tulips across the top. Yes, I really like tulips. But there is more! Yes, it was Spring when I began blogging. But there is another reason! Without using many words, symbols remind us of important things or events. When we seeContinue reading “The Red Tulip”

Decorating for the Holidays – Caregiving Style

Yes, it is fall, which means we are approaching the holiday season. Already we see that the retail stores are crowded with holiday decorations. But should we decorate our living space when we are a caregiver?  Is the result worth the effort? Does our spouse or patient even care? The sight of a favorite knick-knack,Continue reading “Decorating for the Holidays – Caregiving Style”

What Matters Most?

Right here, right now, what matters most to me? Is it how clean my house is? Yes, I need to be sure the clutter is picked up and put away so there is easy access for my husband, who is disabled. I love having a clean house, but is this the most important thing inContinue reading “What Matters Most?”

PD in the News

It is reassuring to know that the quantity of research surrounding Parkinson’s Disease is increasing every day. More aspects of the disease are being studied and more non-motor symptoms being considered. Besides the scientific aspect of PD, more people are blogging about the disease every day. In case you don’t have time to read themContinue reading “PD in the News”

Four Questions You Should Ask

          The mission of this blog is to provide heart-felt encouragement and practical support to people caring for patients with Parkinson’s Disease. In March of this year, I began sharing my thoughts about this journey of walking beside my husband who has Parkinson’s Disease. If you are new to this blog,Continue reading “Four Questions You Should Ask”

Fun-Filled Friday

We all need a little fun in our lives, so I’ve been searching for some fun things to show you to brighten your Friday. If your spouse/patient is having difficulty playing cards these days – difficulty holding the cards in their hands, here are some solutions. (They were recommended for small children who have thisContinue reading “Fun-Filled Friday”

Care-Giving by Stages

  When you hear the diagnosis “Parkinson’s Disease”, you likely have a preconceived notion of what it is. But you also likely wonder, “What do we do now?” There are some important things to remember about PD and how it differs from other conditions. We know the progress will be slow. Whatever symptoms your spouseContinue reading “Care-Giving by Stages”

This is Personal!

I am not an expert on Parkinson’s Disease. I do not have any medical training. I do not even like going to doctors. I am the least likely person to be hired as a care-giver. I do not feel like I deserve a medal for being a care-giver.   But I do have this self-constructedContinue reading “This is Personal!”